As many as 60% of sufferers with hypertrophic cardiomyopathy don’t obtain an applicable analysis once they first come to medical consideration.
Actually, HCM sufferers obtain on common of 4 misdiagnoses earlier than lastly receiving an correct HCM analysis and applicable therapy. A latest paper highlights the this challenge which is essentially attributable to a lack of expertise of HCM within the medical neighborhood. Even cardiologists usually fail to precisely diagnose and deal with HCM, emphasizing one thing that these of us with HCM already know – not all cardiologists are equal in terms of recognizing and treating HCM. Consultants are key!
Medical skilled and affected person schooling and consciousness initiatives are important to deal with these points. Hopefully, over time we’ll begin to see enhancements to HCM analysis and therapy now that there are more and more new skilled and academic initiatives targeted on and round HCM, such because the HCM Society.